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Porphyria: A Lyon's Share of Trouble - 6393

Porphyria: A Lyon's Share of Trouble - 6393

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Desiree Lyon Howe is the co-founder of the American Porphyria Foundation and has also served as the Executive Director of the foundation for twenty five years. In this remarkable book, she relates her own experience with acute intermittent porphyria, a rare disease. Although the keystone of this book is Desiree's story, she also addresses the prime issues that obstruct patients from gaining a correct diagnosis and proper treatment for all of the other porphyrias, particularly since porphyria is not found through regular testing. In fact, many patients are not diagnosed until they are in serious condition or even close to death. In this book, Desiree embraces the challenges of porphyria with the courage and humor and writes in an open and honest discussion of every aspect of this group of diseases. She accompanies the personal stories of other patients in clear and readable prose, with up-to-date, understandable, scientific information of the medical issues involved, including details of the many new and effective treatment options. Every family member or loved one of a person diagnosed with porphyria will derive tremendous insight and guidance from Desiree's experience, as well as vital information to aid in navigating the complexities involved in confronting and surmounting this group of rare diseases.
ASIN: 0975596403
VSKU: RDV.0975596403.VG
Condition: Very Good
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